Saturday, September 10, 2011

More waiting. They decided that they did not want to do surgery right away. An esophagram is planned for Tuesday to see if there is any change. If there is still a leak they want to try to put in some kind of drain. But there is a chance that interventional radiology won't put in the drain, if they don't they will put in a different tube through her nose and pretty much wait a couple of weeks to see if it makes a difference. On one hand I am glad that there may be the smallest chance that they can do something to make this leak heal on its own, and on the other hand I feel like no amount of waiting is going to help and they should just go ahead and do the surgery so we can start the long healing process to get home.
My mom leaves today and then I am back on my own. It has been nice to have someone here to help pass time and help with Avery. I have not decided where I will be staying yet. I qualified for the reduced rate at the family housing, but even $15 dollars a night can add up quickly especially with all the bills we have aquired after spending a year in the hospital and me not working.
I am also not looking forward to being in such a big city on 9/11. I am ready for this weekend to be over. Then I need to start planning Avery's first birthday. The social worker and the child life specialist were asking what kind of theme I wanted.....

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