Where to begin. Things WERE going so well that we were told we would be discharged on Monday. Kevin booked a ticket to come up and help us get everything ready to go home.
Then today Avery woke up sweaty, with a high heart rate, sleepy, and retching. They changed 3 different things yesterday so we are not sure what made her feel so bad, could be the higher calorie formula, changing the rate, or stopping one of the meds that shouldn't have.
The new feeding tube came in today so they switched it out and then I took her down for a g-tube study. That went well.
However, she had an ultrasound on her liver/gallbladder the other day that still showed a dilated duct and some "sludge" so she will have some sort of scan on Monday to see if it needs to be taken out. Simple surgery if you have not had all these other major surgeries.
Now we are kind of in a mess on what to do. This may be my only chance to go home and see Aiden for awhile so I may have to go home on Tuesday before we know if/when she will have to have the gallbladder taken care of. It would have been so nice to know they wanted all these tests BEFORE they said we could go home and tickets were booked.
Avery and her "severed leg" that Misty sent her. Doesn't every little girl dream of having a severed leg to play with???
Then today Avery woke up sweaty, with a high heart rate, sleepy, and retching. They changed 3 different things yesterday so we are not sure what made her feel so bad, could be the higher calorie formula, changing the rate, or stopping one of the meds that shouldn't have.
The new feeding tube came in today so they switched it out and then I took her down for a g-tube study. That went well.
However, she had an ultrasound on her liver/gallbladder the other day that still showed a dilated duct and some "sludge" so she will have some sort of scan on Monday to see if it needs to be taken out. Simple surgery if you have not had all these other major surgeries.
Now we are kind of in a mess on what to do. This may be my only chance to go home and see Aiden for awhile so I may have to go home on Tuesday before we know if/when she will have to have the gallbladder taken care of. It would have been so nice to know they wanted all these tests BEFORE they said we could go home and tickets were booked.
Avery and her "severed leg" that Misty sent her. Doesn't every little girl dream of having a severed leg to play with???
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