Sorry it has been awhile since I have updated this. Avery has been doing well since surgery. They kicked us out of the ICU last week and we have been hanging out on the 10th floor. We are back in our private, spacious room with a view, our own bathroom and the freedom to cruise the hallways. Can't visit the playroom until after the 6th b/c Avery has klebsiella (it can cause pneumonia). Her round of antibiotics are almost done and she hasn't been symptomatic thank goodness. The swallow study went well and she is cleared to get g-tube feeds and eat by mouth. The past couple of days she has been taking 5-10 tastes of baby food. This time around they are giving Avery a medicine to help her wean quicker and easier off of some of the narcotics. The ativan (the one major medicine keeping us here) should be off this week. Now we have to get the feeding thing under control. There have been some issues regarding her g-tube and it leaking. They have changed sizes a couple of times and hopefully today they have found the one that fits the best. No one has really given me a timeline, I suppose it all depends on how Avery does with her feeds in the next week. I think they would prefer if we just moved here, I think thats what I would prefer sometimes (with Kevin and Aiden of course). So it will be a matter of the surgeons/doc telling us when they feel its ok for us to go home and when we feel comfortable leaving. Going home with no answers on how this happened is very hard.