Tuesday, October 11, 2011

Another good gastric study. This is just the strangest thing. We were all so sure that Avery's stomach would not be emptying quickly enough with her feeds backing up so much the other day.
The plan now is to restart her feeds, move the farrel bag up more, and see what happens.
Avery will need another surgery though. =( Dr. J wants to reposition her feeding tube. her stomach has grown and it is just not in the best place anymore. They won't schedule that until they see how she does with feedings. We do have the green light to feed by mouth again so that should be fun.
Kevin is working on possibly coming up to Boston for a bit so I can go home and see Aiden and just have a break from hospital life. The thought of sleeping in a bed, having real TV, cooking my own food, being able to drive, and not wake up with 8 strangers in my face each morning sounds amazing. I wanted him to be here for Avery's surgery. Surgery day is just so long, stressful, and lonely, it would be nice to let him be here for one. But we will see..........

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