Waiting for Boston, round 4

Blowing some dust off this site. It has been quite awhile since I have had to use it. Wow, what a great time we have been having since I last needed to use this thing.
And then, things can just change in an instant.
On Tues I noticed that everytime I picked Avery up she would cry. Immediately I took off her shirt to examine her scar because I am super sensitive about that area. Nothing stood out so I felt a little better. The day went on and she still seemed to be in some pain. I could not recall a time where she fell or got hurt, then the EA motherly instinct starting kicking in. When Kevin got home from work he looked and inititally saw nothing until right before bed. He noticed a small (tiny, really) area on the end of her surgery scar that looked swollen. We knew this probably wasn't a good sign. Took her to the doc the next morning and luckily our primary doctor was there. If it had been anyone else, I know they would have called me crazy and sent us home. She had no other signs or symptoms. A long eight hours later, an ultra sound and a CT scan confirmed our biggest fear. Avery has another leak in her esophagus. It looks exactly like the last one over a year ago.
We are waiting for a med flight to Boston. Everything has been arranged except for one financial piece. I can literally FEEL my world crashing down. Going back to Boston for an extended period of time takes the breath right out of me. No one can understand why this keeps happening so far after surgery. It just doesn't make sense. Avery has always been the one to baffle the surgeons.
Please keep us all in your prayers. Specifically we need prayers for strength, health, that the surgeons will make a quick plan that will work, prayers for people to be understanding of our situation, prayers Aiden will continue to thrive at home without me and prayers for a room at the family housing to open up so I can sleep on a bed here and there.
Thank you,
Stacy

I officially suck at keeping a blog up to date. Here is our summer, in mostly pictures....

THIS SUMMER WE


 planted a garden

enjoyed the beach and the pool

 

 

played inside

 

 played outside

 

 

 

 

there were lots of laughs and even a few tears and 'tudes!

 

 

food was always fun

 

it was fun and exhausting all at the same time!

 

and as always, there was a lot of hoopin' going on. Hope my relatives are ready to bring it!